As a new patient or caregiver, you probably have a lot of questions and may not know where to start in dealing with this complex disease. It is important to know that you are not alone and that help is available. There are many organizations, specialists, and support groups (aside from ours) that are available to help. We have attempted to compile some introductory information here to get you started. You can also find many other resources listed on our Resources page.
If you have any questions or need some guidance, you can also contact us and we will do our best to help you.
For information on other regional MM support groups click here.
Introduction for New Patients
- Start here for a great overview of resources available:
Resource Navigator - Excellent information by the IMF for newly diagnosed patients: https://myeloma.org/what-is-multiple-myeloma
- Comprehensive information on how to understand common labs and tests:
Understanding Common Labs and Tests - A good tip sheet on Making the Most of your Medical Appointments: https://www.cancercare.org/publications/109-multiple_myeloma_making_the_most_of_your_medical_appointments
Here are some great links for information for patients and caregivers:
- 10 Steps to Seeking a Second Opinon – https://www.myeloma.org/blog/dr-duries/10-steps-seeking-second-opinion
- 10 Steps to Better Care – https://www.myeloma.org/blog/dr-duries/10-steps-better-care-bottom-line-2014
- Understanding Your Test Results – https://www.myeloma.org/sites/default/files/resource/u-testresults.pdf
- IMF Understanding MM Series – https://www.myeloma.org/understanding-series
- FDA Approved Myeloma Drugs, Drug Names – https://www.myeloma.org/multiple-myeloma-drugs
- Myeloma Online Resources – resources.myeloma.org
- Caregivers Online Resources – caregivers.myeloma.org
- Health Care Reform – healthcarereform.myeloma.org
- Smart Patients, a discussion group – https://www.smartpatients.com/
- All4cure – https://www.all4cure.com/
Frequently Asked Questions (videos)
- What supplements, if any, should a myeloma patient take? Supplements
- What are the options for a patient who has relapsed a two-drug combination? Two Drug Relapse
- What is Minimal Residual Disease? MRD
- Should the cost of Revlimid be reduced? Revlimid
- Should patients be tested further if they have excellent responses to initial treatment?
Further Testing - Is it important for an MM patient to see a myeloma specialist? Myeloma Specialist
- Understanding a Multiple Myeloma diagnosis Understanding